I've posted this on it's own as a Facebook status update previously. I think it needs a bit more signal boost in these dire times when healthcare in England seems to be forced into a corner and the respect shown by the politicians to it is dwindling. I've edited some names out, but otherwise I'm publishing it as is. I'll post another update on what's going on with The Larva later today or tomorrow.
Today I would like to wholeheartedly thank the medical profession and the NHS. Having just done my morning jab of dalteparin sodium (Fragmin), a moment of reflection on how my quality of life is so much better today than it was before Christmas, when we knew I was pregnant, but hadn't gotten my prescription yet - back when I was living for a few weeks in a constant and ever looming dark cloud of FEAR OF DEATH. Let me explain...
It's now been five years - might even be to the day - when I was given the news of having inherited Factor V Leiden (FVL) from both my parents, making me a homozygous sufferer of high risks.
I found out that while the occurrence of a blood clot is about 1:1000 in normal population, people who'd inherited FVL from one of their parents had the chance of 4 to 8 in a population of 1000. I've won the lottery of having the chances of getting a clot up to 8:100. That is, normal population has the chance of 0.1%, mine is 8%, and that is before you factor (ha!) in being overweight, over 35, and pregnant or using hormonal contraception. If you want a more acute comparison, I'm basically carrying two six shooter revolvers all the time, with one bullet, ready to play Russian roulette of getting a thrombosis.
So, to return to my bedside musings next to my sharps box, slowly filling with used needles, and the small sting and collection of bruises on my stomach... Thank you, nurses and doctors who treated my sister, when she had a blood clot, and tested her. Thank you, nurses and doctors who tested my mother when she was diagnosed with cancer of the bile duct five years ago. Thank you, Outi Silvola-Kallio, the occupational health doctor at Mehiläinen, who saw me and listened to my woes when mother was sick, and agreed to test me as well for FVL. Thank you, Marja Sankelo, haematology expert at TAYS, who wrote me instructions on what FVL means. Thank you doctors who've prescribed me Clexane injections for both my California trips since my diagnosis. Thank you, medical professionals at my doctor's office for taking my foreign paper work seriously and forwarding the information to hospital and the consultant doctor who prescribed me the injections I'm taking daily now, until September. Thank you, friends in medical profession who might have heard me complain about FVL, and ...
Thank you NHS for the maternity exemption certificate. There isn't a day that I'm not grateful for what I've been given. Every day I'm grateful for the British taxpayers, who fund this marvellous system and especially the maternity exemption certificates. Physically it's only a piece of plastic, but the idea of giving pregnant women and mothers of children under 12 months FREE prescription medication and FREE dental care is something Finland should take as an exchange for introducing the world to the baby box of material goods. In Finland, my monthly medication would cost around 210€.
No comments:
Post a Comment